For invisible illness awareness week!
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Cushings Disease: I have a tumor on my pituitary gland which causes an overproduction of cortisol, which is the bodies natural steroid. my body produces 8x's the amount that yours does... only 1 in 500,000 have this disease...
2. I was diagnosed with it in the year: 2010
3. But I had symptoms since: probably high school, but they really started appearing the past 4-5 years. but the drs just said i was fat. and needed to diet. and exercise. so i did, but it didnt help.
4. The biggest adjustment I’ve had to make is: that I have to let people help me, let my guard down and trust people to be there. I'm not as independent as I was. I can't work or go out whenever I want.
5. Most people assume: That everything is fine because I'm smiling, or that I don't need people to say, how are you? or ask me to hang out. why do I need to keep our friendship going? I'm tired of it, and I'm done doing it. 6. The hardest part about mornings are: trying to wake up, walking
7. My favorite medical TV show is: Grey's Anatomy
8. A gadget I couldn’t live without is: My crackberry
9. The hardest part about nights are: falling/staying asleep. Not scratching myself to death. The stria itches like crazy
10. Each day I take __ pills & vitamins. (No comments, please) I take about 15-20 pills a day
11. Regarding alternative treatments I: I LOVE reiki and I love @thehealingpath
12. If I had to choose between an invisible illness or visible I would choose: It depends. No one believed my headaches until I had the crainiotomy and had half of my head shaved! But then again, certain bitches decided that I threw myself down the steps to break my foot so I could get out of going to work and I could go to the beach.
13. Regarding working and career: I miss working, but there's no way I can go back right now. I need more treatments, I can't drive long distances or focus for long periods of time. I don't know that they care that much either. But I would like to be doing something. 14. People would be surprised to know: that I feel broken and I fear being a burden to my loved ones. and that I feel ugly... I know it's crazy but... it's true.
15. The hardest thing to accept about my new reality has been: I cant see out of my right eye and I keep walking into things, or I forget alot bc of the brain tumor/surgery
16. Something I never thought I could do with my illness that I did was: Fall head over heels in love with the man of my dreams
17. The commercials about my illness: there are none.
18. Something I really miss doing since I was diagnosed is: going to the beach, going to the bar, dancing, laughing, hiking,
19. It was really hard to have to give up: im a busy bee! i always do lots
20. A new hobby I have taken up since my diagnosis is: relaxing :)
21. If I could have one day of feeling normal again I would: go to wildwood, ride the coasters, run in the ocean, have a few margaritas, dance the night away
22. My illness has taught me: that I don't have to be so strong all the time. It's ok to let people in. I've also learned who I can and cannot count on.
23. Want to know a secret? One thing people say that gets under my skin is: It's gonna be ok. or how's your eye? or... my favorite, you mean you really cant see?24. But I love it when people: send me random messages saying theyre thinking of me. or cards. i love cards.
25. My favorite motto, scripture, quote that gets me through tough times is: never lose hope. never lose faith. never ever give up.
26. When someone is diagnosed I’d like to tell them: this sucks, but we can get through it together.
27. Something that has surprised me about living with an illness is: that it's not so bad relying on other people. and I love my cushie friends.
28. The nicest thing someone did for me when I wasn’t feeling well was: surprise visits at the hopsital :) my team nicci jersey crew coming out here to take me to dinner, jennie having her 25th bday by MY house bc i couldnt go an hour 1/2 away
29. I’m involved with Invisible Illness Week because: people need to know it's not so easy being us.
30. The fact that you read this list makes me feel: that maybe you really give a shit :)
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